A roadmap to develop dementia research capacity and capability in Pakistan: A model for low- and middle-income countries


Leroi I., Chaudhry N., Daniel A., Dunne R., Eman S., Farina N., ...Daha Fazla

Alzheimer's and Dementia: Translational Research and Clinical Interventions, cilt.5, ss.939-952, 2019 (Scopus)

  • Yayın Türü: Makale / Kısa Makale
  • Cilt numarası: 5
  • Basım Tarihi: 2019
  • Doi Numarası: 10.1016/j.trci.2019.11.005
  • Dergi Adı: Alzheimer's and Dementia: Translational Research and Clinical Interventions
  • Derginin Tarandığı İndeksler: Scopus
  • Sayfa Sayıları: ss.939-952
  • Anahtar Kelimeler: Dementia, Lower and middle-income country (LMIC), Research roadmap, Pakistan, South Asia, Capacity and capability building, Older adult, Mental health, Alzheimer disease, Research question prioritization
  • Sağlık Bilimleri Üniversitesi Adresli: Evet

Özet

Objective: To produce a strategic roadmap for supporting the development of dementia research in Pakistan. Background: While global research strategies for dementia research already exist, none is tailored to the specific needs and challenges of low- and middle-income countries (LMIC) like Pakistan. Methods: We undertook an iterative consensus process with lay and professional experts to develop a Theory of Change-based strategy for dementia research in Pakistan. This included Expert Reference Groups (ERGs), strategic planning techniques, a “research question” priority survey, and consultations with Key Opinion Leaders. Results: We agreed on ten principles to guide dementia research in Pakistan, emphasizing pragmatic, resource sparing, real-world approaches to support people with dementia, both locally and internationally. Goals included capacity/capability building. Priority research topics included raising awareness and understanding of dementia, and improving quality of life. Conclusion: This roadmap may be a model for other LMIC health ecosystems with emerging dementia research cultures.