Through the eyes of the parents: a transdiagnostic psychiatric perspective for children with differences of sexual development


Ozbaran B., Senturk-Pilan B., Yavuz-Kan O., Yulug-Tas B., Inal-Kaleli I., Er E., ...Daha Fazla

Journal of Pediatric Endocrinology and Metabolism, cilt.37, sa.12, ss.1066-1076, 2024 (SCI-Expanded, Scopus)

  • Yayın Türü: Makale / Tam Makale
  • Cilt numarası: 37 Sayı: 12
  • Basım Tarihi: 2024
  • Doi Numarası: 10.1515/jpem-2024-0338
  • Dergi Adı: Journal of Pediatric Endocrinology and Metabolism
  • Derginin Tarandığı İndeksler: Science Citation Index Expanded (SCI-EXPANDED), Scopus
  • Sayfa Sayıları: ss.1066-1076
  • Anahtar Kelimeler: differences of sexual development, transdiagnostic, psychiatry, psychiatric symptoms, parent perspectives
  • Sağlık Bilimleri Üniversitesi Adresli: Evet

Özet

Objectives: Existing literature lacks data on a subgroup exhibiting psychiatric symptoms below the DSM-5 diagnostic threshold within differences of sexual development (DSD) cases. Our study aims to assess parental knowledge, attitudes toward DSD, and parental perceptions of emotional and behavioral states through a transdiagnostic perspective. Methods: The study was conducted with a total of 35 parents of children with DSD. Two groups were established via k-means clustering, based on psychiatric symptomatology levels, derived from The Strength and Difficulties Questionnaire - Parent Form and The Revised Children's Anxiety and Depression Scale - Parent Form: with one group exhibiting lower reported psychiatric symptoms (LPS=27) and the other demonstrating higher psychiatric symptoms (HPS=8) by parents. Results: Our study found that many parents were hesitant to disclose DSD diagnoses to their children, believing them to be too young to comprehend the information (42.9%) and that they were unaware of the available support that could be provided by the medical team in disclosing the diagnosis (25.7%). Our study found no differences in DSM-5 diagnoses between HPS and LPS groups (p>0.05), with ADHD being the most prevalent diagnosis (21.7%) and a significant overrepresentation of children with a discrepancy between assigned gender at birth and gender upbringing in the HPS group compared to the LPS group (p<0.001). Conclusions: Our study emphasizes the necessity of a transdiagnostic approach in psychiatry to move beyond binary conceptualizations and better understand the complexities of individuals with DSD.